When pain lasts – keep searching for the cause

Origami cranes for health

Origami cranes for health, after the earthquake at a shrine in Fukushima.

I’ve had somewhat of a long history with a variety of chronic pain conditions.

Migraines, sciatica, costochondritis from my early teens still plague me today, although some are more easily managed than others with physical therapy – movement and stretching help sciatic pain enormously, and the chest pain some of the time. Migraines seem to be cyclical, with a bit of stress influence.

Fibromyalgia joined the mix in my early 20s, probably after a bout of undiagnosed glandular fever, throwing in muscle and joint pain and fatigue. Of course, this is an umbrella diagnosis – no one know the real causes, and treatment varies wildly between patients. Recent theories have proposed that fibro pain really is in sufferer’s heads – malfunctioning pain receptors in the brain. I struggle with remaining productive with my fibromyalgia using hacks when I can, but know that the other pain conditions are worsening this condition.

The worst ongoing pain and doctor ignorance, has been thanks to me producing far too much estrogen. Painful, heavy and long periods hounded me throughout my teens and tweens, with doctors and specialists constantly assuring me either that it was normal, or that I was fully imagining the pain.

It wasn’t normal. Not in the slightest.

Because the doctors had ignored it for so long, endometriosis had covered the inside of my abdomen, making it too dangerous to remove surgically, until the blood supply had been reduced  with Zoladex.

Even after three operations for the worst endometriosis the surgeons had seen, I was told the pain was just in my head. They later found my womb was riddled with adenomyosis – endo that had grown through and in the muscle wall. Even after 5 surgeries, and now 3 chemically induced menopauses, my belly tortures me with cramps, aches, IBS symptoms, bloating, bursting cysts, and inflammation. The endo has now grown into my bowel, throwing up the risk of a bowel re-section (no thanks!)

A surgeon recently gave me hope, suggesting a oopherectomy might get rid of the incessant problems, but the gyn has refused. Am now seeking a third opinion. Anything to get rid of this overriding pain.

Morals of the story

Have you ever had doctors say that you imagined your pain, only to find out they were wrong some time later, and you really were sick? 

Tell me about it in the comments below!

If this post resonated with you, please share it!


About LearnedWords
Freelance writer and language coach. Eternally curious, eternally learning. Managing multiple chronic pain illnesses.

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